Welcome to Salty Girls Taste Better

Cystic fibrosis (CF) is part of my life and I am indeed quite salty as salty sweat is a symptom of this callous disease. Even though people with CF are living to an older age today compared to just a decade or two ago, we are still striving for a longer life expectancy and waiting for treatments that can allow for a better quality of life without several hours of treatments every day. Therefore, the proceeds from the sales will go to Riksförbundet Cystisk Fibros which is the Swedish charitable organisation for people with CF.

There are currently two shops active; Spreadshirt is based within the European Union and TeePublic in the USA.

Much love,
Johanna

Salty Girls Sing Better

Six years after Salty Girls Taste Better was first published Linda Magdalena Jonsson has kindly created a new element to the design to bring about Salty Girls Sing Better. This new development was inspired by my good friend Ashley Ballou-Bonnema and the profits from this print will go to her sINgSPIRE Virtual Choir project, which I have been fortunate enough to be part of.

The sINgSPIRE Virtual Choir represents a diversity of individuals with cystic fibrosis while serving as a catalyst for community through the life-giving love of singing. Each unique and beautiful voice building something greater together – its power apparent in each individual’s unique story brought to life through the gift of song.

Cystic Fibrosis

Woe to the child who tastes salty from a kiss on the brow, for he is cursed and soon must die.

Cystic Fibrosis is an inherited disease that causes the sweat to become very salty and the body to produce abnormally thick and sticky mucus. It primarily affects the lungs and digestive system, but other organs can also be affected. For the disease to manifest two faulty genes are required, one from the mother and one from the father.

There are more than 70,000 people diagnosed with cystic fibrosis world wide. With the treatment available today the life expectance is approximately 40 years, but research provides hope of a better quality of life – and a longer life.